Homocysteine down to 11.5, methlymalonic acid down to 257. Hi, Dr. Westin ChildsI had Graves disease and had the radioactive iodine treatmentyour information was so good to read..weight gain is becoming an issue I just watch what I eat and exercise as much as I can I also have osteoporosis but managing well so far Thank you so much for your information. And if the color is hash on the . Looking forward to your feedback . If I take a snack is determined on what my glucose reading was. I know I shouldnt be so vain, but honestly I am on this. The short answer to this is no taking iodine supplements will have little to no effect on your hair growth. The real concern with radiation exposure to others in your family has more to do with them coming into contact with actual contamination. Recently also diagnosed with B12 deficiency and had exhibited most of the symptoms! It sounds like you are being underdosed based on your TSH level. I know this post is older but I am considering radiation! Im a nurse, and tend to over think things. Read our, An Overview of Thyroid Disease Treatments, The Low-Iodine Diet for Radioactive Iodine Treatment, Society of Nuclear Medicine Procedure Guidelines (PDF), Practice Recommendations of the American Thyroid Association (PDF). It is what it is. Before they killed my thyroid and before it was even diagnosed the heat affected me something terrible and would just take my breath away. I have AFib and concerned for my heart about going into the obese stage. I HAD MY RAI LAST SEPTEMBER 12, NOW IM ALREADY 2 MONTHS AFYER MY RAI. I feel horrible. Anna Thomas. I would say many of your symptoms are unusual but this article highlights some of the routine side effects that may be experienced. These symptoms are not caused by the procedure itself but rather a consequence of the damage of the thyroid gland and the inability of your body to produce thyroid hormone. 5PM supper with VS and glucose readings. It probably wont be an issue if you left but you wouldnt want to find yourself in a situation where you are unable to get your thyroid medication and your symptoms are poorly controlled. When you are given radioactive iodine, it is taken up by cancer cells and destroys themincluding those that have spread to the lymph nodes or other parts of the body. My weight seems to be of no concern to him as long as my blood work looks okay. So I have graves disease but was only diagnosed because I was actually gaining weight. I was put on Levothyroxine 175, then when I met my endocrinologist, by that time TSH levels had dropped some so Levothyroxine down to 137. Because your thyroid has been ablated, you will most likely need thyroid medication for life. It targets VEGFR, BRAF, and RET tyrosine kinase and inhibits the proliferation and angiogenesis of cancer cells. You can find my recommendations on how to manage hair growth/hair loss with thyroid disease in this detailed guide: https://www.restartmed.com/thyroid-hair-loss/. Small amounts of I-131 may also leave through your saliva, sweat and feces. I was being treated for hypothyroidism and graves . This comes in the form of a simple hormone medication that you can take each and every day to help normalize your thyroid hormone levels. The researchers found that the proportion of overweight people increased from 9.6% to 18.5% (almost double) and the proportion of obese patients increased from 6.4% to 21% (almost quadruple) (4). Since the science is inexact there are two ways of approaching the treatment. So, if I go to bed earlier, I have to set my alarm clock to get up to take the damn pill, then have a hard time to get back to sleep, then just when I do fall into slumber, its time to get up and going for the day, and take a list of other meds, and monitor VS and glucose readings. I am now 54 years old. Because it changes how you should be thinking about your medical condition, it changes the types of natural treatment options that may be available to you, and it changes your treatment. They wanted to give me more RAI IV for test, but I refused and I know I would have died had they done that. I am feeling all the emotions you described, depression is a big one, but all anyone is interested in is giving me another pill to make me happy again. I have battled my weight since I was a child, I had dropped from 400 pounds to 210 about six years prior, and was afraid all my efforts would be lost now. It really depends on whether or not your entire thyroid gland was destroyed. Its even more important to test free thyroid hormone levels if you no longer have a thyroid gland. The interesting part was the B12 level was normal at 737 but methylmalonic acid slightly high(319) and homocysteine at 13.9. Can you tell me about when I will start medication, or should I be tested first? The issue now is that I have no refills on the levothyroxine and have not had any blood work in about 2 years. I had RAI in 2010 and was eventually started on a regime of 150 Levothryroxine daily, about 8 weeks post treatment. Alpha Lipoic Acid (ALA) and Thyroid Health: Is it Safe to Use? So, if papillary or follicular thyroid cancer has spread to any other part of the body, we can still use this therapy to find and destroy it. Memory loss. So far I feel strong and as I did before. Is there anything I can do to protect myself as I am driving her. The entire goal of the procedure is to put radioactive iodine molecules into your body with the sole purpose of destroying your thyroid gland. Hi,I have awhile to have enough hair to dye.I also have another 4wks. The average thyroid patient gains about 15 to 20 pounds after RAI/thyroidectomy and this weight is more pronounced if the thyroid patient was overweight prior to the procedure. If you have questions regarding your health you should seek qualified information from a medical professional or your doctor. One thing I didnt see in your article is the correlation of Thyroid to Diabetes and CTS. This keeps the radioactivity from destroying other cells in your body and only allows for the destruction of your thyroid gland. So when you take radioactive iodine your body will automatically take it up and store it in the thyroid gland. My endo physician would not increase the dosage so I went to my G.P. All my life my hair was thin and fine. Men should sit down when urinating. I would actually think about taking chances with the cancer instead of gaining weight. My entire life has been turned upside down. In most reports, the side effects include contrast dye allergy reactions, hyperthyroidism, and contrast-induced nephropathy accumulation of metformin. One study looked at 157 people and tracked them both before and after their procedure. The doctor started me on .50 of Synthroid, and taking the first dose my eyes cleared the next day. You can eat the following foods because they contain very low levels of iodine: fruits and vegetables including potatoes. I had RAI treatment done 10 years ago. I had RAI about 15 years ago and yes I have gained weight, less energy & I sweat a lot(buckets) doing nothing Potassium iodide (KI) is a type of iodine that is not radioactive and can be used to help block one type of radioactive material, radioactive iodine (I-131), from being absorbed by the thyroid. The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone. The good news is that you can fairly easily identify these symptoms and you can order tests to determine how well your thyroid is functioning. It does have effect : Radioactive dyes containing iodine of the iodide type can cause permanent thyroid damage and cancer. If you fit into this category then you may not need to use thyroid medication afterward. If you destroy the entire gland then you will definitely need to be on thyroid medication. Please see these articles which explain why weight loss is so difficult after thyroid removal or RAI: https://www.restartmed.com/levothyroxine-thyroidectomy-patients/ Hi doc! Most thyroid patients who receive RAI treatment eventually end up hypothyroid and will need to take thyroid hormone replacement drugs indefinitely. fresh bread. You can find some tips and tricks on how to find the right type of doctor here: https://www.restartmed.com/thyroid-doctor/. Thank Sharon. In your case, these would be best: https://www.restartmed.com/product/thyroidectomy-rai-bundle/. Not everyone gains weight after RAI, if thats what you mean by treatment but if you are going to, it will start within 4-6 weeks of the procedure and may continue for several months. And how can I persuade my GP to think about more than a TSH reading? Will you be able to lead a normal life? I had RAI treatment year 2010, and now I am taking levothyroxine for my hormonal replacement since I am considered as hypothyroid patient. Doctors made me think it was my only option at the time. Once your thyroid is destroyed, it will no longer work exactly as it used to. Yes, absolutely. They said I have HYPERthyroidism but she said I have a HIGH metabolism which doesnt make sense?! to covid weight, but now the hair loss! Radioactive iodine. This can delay subsequent use of radioactive iodine (RAI) therapy because the iodine can compete for uptake. Findings from a study of patients who received radioactive iodine (RAI) treatment for hyperthyroidism show an association between the dose of treatment . Warm shades on cool undertones can make you look washed out or dull. Iodine is found naturally in some foods and is also added to salt that is labeled as "iodized". Along with a pain and numbness in my right hand. Certain 'hair supplements' should be avoided as they may contain iodine or interfere with levothyroxine . 20 yrs ago. But, I am having a lots of rashes all over my neck and scalp, it got swollen and bumps. You may also experience nausea and vomiting, as well as a decrease in appetite. Should you expect to live a normal life afterward? Mary Shomon is a writer and hormonal health and thyroid advocate. Because of PTC, I had a total thyroidectomy two weeks ago and now on Levo. The connection between your weight gain and hyperthyroidism is explained here: https://www.restartmed.com/methimazole-weight-gain/. June 10, 2022 . Please give me your thoughts. #3. Yup, the pain and numbness Dx CTS, that was put on the back burner for a while, as it wasnt all that troublesome at the moment. Hi So, do your research, make sure RAI treatment is right for you. This shouldnt stop you from trying natural therapies (as long as they are relatively inexpensive and not harmful) but you should have reasonable expectations as you do so. I dont see such good numbers. I was tested in 6 weeks and my thyroid numbers were still high so I was not tested again until Feb. 2019. Can I dye my hair? 1. Personally I doubt that what you describe is RAI-related because it is ongoing and (in my experience) reversible and because iodine does not have an obvious connection with hair follicles, whereas thyroid axis hormones . The radioactive iodine uptake test (RAIU) is also known as a thyroid uptake. I also used Nioxin shampoo. You can get by this side effect by simply banking some of your sperm prior to your procedure and then using that sperm at a later date with procedures such as intrauterine insemination. Can You Get Everything Your Thyroid Needs From Food? Very small amounts of radioactive iodine may be absorbed by your salivary glands, and the lining of your stomach, which may cause side effects such as a sore throat or hoarseness. You wont be able to sleep next to people, go to work, prepare food for others, go into public places, fly on an airplane, ride a bus, share utensils with others, sit on a public toilet, and so on for about 1 week (3). Dairy products (such as milk, yogurt, and cheese . Avoid sleeping in the same bed with a pregnant woman, infant, or child for a period of six to 23 days. I feel good, but still struggling with tiredness and some weight gain (some weight gain due to post menopause). 3 days after that I started to become sick after I ate an unable to sleep. Need better symptom control? Prior to discovering the bump, I had reversed my Diabetes and had consistent HA1C readings of 5 or lower. It doesn't matter where those cancerous cells might be. Even at this age, I still want to feel and look pretty. A high uptake of radioactive iodine suggests Graves' disease. I expect to be back to probably about 60 to maybe 70% and that is pushing it. And in addition to going back to surgery for the left lobectomy, to expect to be on the Radioactive Iodine therapy. Well since this journey has began Ive lost almost all of my hair and gained a ton of weight. Then she said I would have to have iodine radiation if these pills didnt work. I had radiation iodine therapy in late September. The last person put me on methazolo and I read the awful side affects. Many clinical studies have also confirmed that weight gain after RAI is a real risk. I know, I know, I shouldnt be so vain. Thank You. I was experiencing heart palpations, diffuclty breathing while lying down, weight gain. I felt well on this level. The recommended timeframes are based on the size of the dosage you are receiving, so discuss the specifics with your healthcare provider prior to treatment. Both hyperthyroidism and hypothyroidism cause intolerance to heat and cold respectively, so that isnt uncommon but what is uncommon is to experience those symptoms after RAI. Thanks look forward, Yes! Initially, before treatment I went to a renowned clinic due to having double vision. Hello, not sure if this post is still active. I'm Dr. Westin Childs. Im at the point now where I told all the doctors for my medical team, and team being the operative word here, that Im not going to offer anymore feelings of what Im going threw, or feeling, Im not going to ask anything, nothing, you all have my lab reports and other diagnostics, y all can figure it out for yourselves! Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. If you are unable to get ahold of them then it may be necessary to go to the ER. My supplements can help but they will not take the place of thyroid medications like levothyroxine. Just have my RAI 2days ago. When we are deficient in this nutrient, the health of our hair is affected, leading to hair weakness or even total hair loss. Radioactive iodine works by taking advantage of the physiology in your body (1). I had never been to endocrinology prior and had no idea about thyroid function. Catnip works for lighter colors. If so, what are you struggling with? Im planning on RAI in the next 2 weeks. This is more common if you still had a large part of your thyroid gland when you have radioactive iodine treatment. 1-2 Capsules of Leptin Resistance RX daily https://www.restartmed.com/product/leptin-resistance-rx/. When the gadolinium is injected, it is normal to feel coolness at the site of injection, usually the arm for a minute or two. Dr. Yash Khanna answered. olive oil, vegetable oils and nut oils. A better option might be to try just a partial thyroidectomy or to take out just the half of the thyroid with the cancer. Radioactive iodine treatment is a therapy that your veterinary surgeon may recommend if your cat is diagnosed with hyperthyroidism. There's no medical indication to support this as a benefit, and as we mentioned above, excess iodine could cause much bigger problems in the long run. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. Youll still need to get those but the supplements can be used in addition to them. There is a paucity of literature on the minimum interval between contrast administration and RAI therapy. Theres a higher risk that the cancer comes back but its also a way to preserve some thyroid function. that I need doesnt come in one pill so Im taking 100 mcg one day and 75 on the other. Will it cause you to gain weight? Created for people with ongoing healthcare needs but benefits everyone. This particular visit, my HA1C was up to 6 point something, and caused alarm as I am strict with my diet, admit though at that time I allowed myself a free day to eat as much and all the treats I wanted or craved. The only other condition that causes heat intolerance that comes to mind is menopause and perimenopause. And, if you destroy your thyroid gland, it turns out that that may have consequences on your metabolism. Contact: NCI Press Office. So I stopped going. You probably will not feel sick during this time, but these precautions are in place to prevent you from accidentally harming another person! can i color my hair after radioactive iodine. The highest sources (and those to be avoided) are iodized salt, grains and cereals, some breads . If you have any thoughts, I would appreciate those. non dairy spreads such as Vitalite, Pure and non dairy Flora. Iodine is used in the care and feeding of animals and as a stabilizer and/or safety element in food processing. 12 noon, lunch and VS with glucose readings. A second set of scans will be taken after the contrast dye has been given. Also learn more about our which will minimize the contamination in your home's isolation room. The answer is maybe, and it depends on the person, how much damage was done to their thyroid, and other factors that arent always in your control. Hi, doctor, I am in a lot of pain I stay cold 100 percent of the time with body aches sleepless nights. What are you concerned about? 4. Take care in washing, treating and grooming your hair. They also found that nearly 1 third of all patients (31.2%) moved into the overweight or obese category from a lower weight category (based on BMI charts by the CDC). If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. I had radiation treatment for my thyroid 5 days ago to shut down my thyroid. It may sound counterintuitive, but youll understand why you might want to after your procedure. Some people may have a feeling of tightness or swelling in their neck for a few days after treatment. It is a good idea to increase your fluid intake after an imaging exam involving an iodine-based contrast material to help remove the contrast material from your body. hisc hose nozzle parts. If contrast dye is used, you may feel some effects when the dye is injected into the IV line. menopause etc. Family Medicine 59 years experience. https://www.restartmed.com/weight-loss-after-thyroid-removal/, Hello I had the rai treatment 33 years ago and I have never felt good since then , more recent they ultrasound my thyroid gland and the lady who did the ultrasound kinda freaked out saying to me where is your thyroid gland hat did they do it it, I was in the hospital with pancreatitisNo dr has told me there could be a reason for getting pancreatitis with hypothyroid and how can my blood tests say my thyroid is producing hormones and is low which means high . Free T3. Important to men is the fact that radioactive iodine can cause short-term reductions in sperm count for up to 2 years after your procedure (8). Radioactive iodine may also be helpful for people with certain types of thyroid cancer. Have you ever heard of this before? I have Graves Disease and lost 40 pounds. Radioactive iodine (RAI) is a treatment that uses radiation to treat thyroid cancer. I would take a look at this article for more information on why people gain weight after RAI: https://www.restartmed.com/hyperthyroidism-weight-gain/, You can also find some tips for weight loss in this article (even though it is more specific to thyroidectomy): https://www.restartmed.com/weight-loss-thyroidectomy/, After the treatments, How fast do the weight begin to add in the pounds. To keep my glucose readings at or below 120, the desired reading by my PCP and endocrinologist, I am strict to my vegan/plant based diet, and consume 600 to 800 calories per day. There isnt a specialist in the area of hormone balancing but you can use the resource above to help you find someone who can help you. Verywell Health's content is for informational and educational purposes only. To increase the effectiveness of your upcoming radioactive iodine therapy, you may be prescribed a low iodine diet. Here are some ways to minimize radiation risks to other people (and pets) after you have had RAI treatment: Stay at least six feet away from other people, including members of the public, family members, and co-workers, for three to 11 days. A thyroid scan is a type of nuclear medicine imaging. Society of Nuclear Medicine & Molecular Imaging. Additionally, there is also a hypersensitivity reaction. They may even preemptively schedule you to start thyroid hormone treatment within a few weeks of the RAI procedure, just to be safe. Reply. Strange I know. Many people undergo radioactive iodine treatment (RAI) without really understanding what is happening in their bodies. But if you're having radiation to the head and neck area and experience hair loss, it's best to wait a few months after your hair has grown back. The relationship between your thyroid to your hair growth aside, iodine . can i color my hair after radioactive iodinesvetlana invitational 2022 Consultation Request a Free Consultation Now. A swollen or tender neck and feeling flushed. This means avoiding public transportation, hotels, carpools, and in some cases, your workplace. Leave a Comment Cancel Reply . You should have your thyroid lab levels tested to see if you need medication. It can be an iodine-based material, barium-s ulfate, gadolinium, or saline and air mixture that can be swallowed or injected intravenously. Is it healing and producing its own thyroxine now? I know they are going to try to drop me further. If below 100 I will consider a snack of some nuts or piece of fresh fruit. I live in Florida and I cannot stand enjoy the outdoors anymore because of the heat. As I am not a doctor, my specific question is why does the level of levothyroxine I require change if my thyroid was destroyed? To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. relative viscosity of nylon 6; predictive index cognitive assessment answers; why do baseball players spit so much My endocrinologist said RAI didnt work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) Because the hair is sealed off during the BK treatment the color might not be able to penetrate into the cuticle. What can I be looking at regarding weight gain. Tips for Eating and Cooking While on a Low Iodine Diet. This is probably not what you want to hear, especially if this is a procedure that is necessary for your health, but its still important to know about it. Also I drink 100 ounces of water plus other hydrating fluids and food per day. I had severe and sudden weight loss along with many other troubling symptoms. Generally, yes. ordinary table salt and sea salt. Do not share any towels, razors, toothbrushes, cups, spoons, forks, or dishes. Your hair should be colored before a BK treatment. You can omit the leptin resistance rx if weight isnt an issue (but it tends to be something that many RAI patients struggle with). One of the more surprising aspects of getting RAI done is the fact that you are quite literally radioactive after your procedure. It has to do with how important your thyroid is in regulating your metabolism and your weight. This is an extension of what weve already discussed but its worth spending some time on this specific point. The risk of developing a secondary malignancy due to radioactive iodine therapy . Iodine is essential for proper function of the thyroid gland, which uses it to make the thyroid hormones. Its been a week after Hi! Read More. what is the normal amount of time a person needs to be off thyroid supplemental medication before the radioactive iodine treatment is done? To further avoid exposing others to radiation:. I dont feel like I have gone back hyper after being off my meds for 4 weeks. Papillary and follicular thyroid cancers develop from follicular cells, which absorb iodine. With a regime as this, its no wonder for depression, no sleep! You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. Your doctor should monitor you for symptoms of hypothyroidism after RAI treatment. After you get the dose, the scanner checks your entire body for signs of radioactivity. 8.1, Because I began feeling very unhealthy this week further blood tests were done. Yes I took the radation iodine pill five days ago what can I take for itchy skin I got some cortisone will that help. Use vitamin C powder. Here are 4 ways you can get more help right now: #1. All rights reserved. After that they again were having the same symptoms. Thank you, I had RAI treatment 21 April 2017 dose was 400 MBq ( United Kingdom) I was diagnosed Graves disease 2008 my thyroid levels wasnt massively high I refused rai treatment 2011 contunie Antithyroid medication treatment almost 8 years ! If we extrapolate out this data then it means that on average 30% of all people who undergo RAI can expect to gain some kind of weight. I was recently on Naturethroid for some years and it seemed to be a better choice for me, it was quite the battle to get the Drs to prescribe it. #2. My TSH is very low but my free T3 indicates my body isnt using T3. Hey! Ive certainly seen some patients reduce their total dose of thyroid medication by undergoing some natural therapies to help restore thyroid function after RAI (but the number of patients Ive seen in this category is somewhat limited). Rinse your hair with warm water and shampoo it. Pls.can u explain about this. Prior to that, I always weighed in the 125-130 lb range (normal for my height). IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! SHBG :43 (16-55) Serum folate levels was :17.1(2.0-18.7)b12 vitamin levels was :565 (197-771)ferritin levels was :175.9(30-400)red cell count was :4.87(4.25-5.77)white cell count was :5.6(4.5-13.0) I dont understand how this happened sir ? In some radiation emergencies, usually nuclear power plant accidents, radioactive iodine may be released into the environment and enter the body through breathing or eating it. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. Any advice . Rarely, people can feel pain in their neck. If you drive home after your appointment and there's another . Because it is entirely possible to only destroy a portion of your thyroid gland and not the entire gland. If you are unable to avoid direct or indirect contact with infants and young children, ask your healthcare provider about the possibility of hospitalization. After rai treatment I had blood test results was :freet4 was 13.3pmol/L (11-23)free t3 was 4.30pmol/L it was normal (3.1-6.8) I was happy and I had another blood test 26 July 2017 and results was TSH was 0.01 (0.35-4.94) freet3 was 16.32 pmol/L (never ever high like this before) (3.1-6.8) my freet4 was 46.3 pmol/L (11-23) I was shocked how this happened after RAI treatment Sir ? Please help! The combination you would want to try if you are post RAI is as follows: Thyroid Daily Essentials 1 packet each day https://www.restartmed.com/product/thyroid-daily-essentials-thyroid-multivitamin/ I also noticed my left leg larger than my right, so I do a daily measurement at mid calf before I eat or drink anything. I go to great lengths to help my users better understand their health; however, the content you see here is not a substitute for medical advice. Anecdotally, youve probably already heard stories about people gaining weight after their procedure. under the skin, like a vaccine) and the radioactive iodine is quickly absorbed into the bloodstream. My question is even though my thyroid is dead, should the T3 and T4 level be tested as well? So I had the ablation without much research on my own, and now Im at the highest weight of my life and miserable.
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